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WEDNESDAY, AUGUST 20, 2008 07:32 AM, CDT
Hey, Misty!
Was sorry to hear about Russ but hope his family is doing alright considering.
How is school going for everybody? Drew started last week at Vestavia East. It was a big adjustment going to full days for him, but I know he's having a great time with all the new kids. There are three in his class who were at Lakeside with him...luck of the draw, but how lucky for him.
I hope you and everybody are doing well. I'm praying for y'all. Keep in touch. Would love to chat one day soon.
Marni
Marni Ulch
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Vestavia Hills
United States
SUNDAY, AUGUST 17, 2008 03:27 AM, CDT
Many prayers for your family!
PAULINA JUMP
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Sparta, KY
United States
SATURDAY, AUGUST 16, 2008 07:48 PM, CDT
Misty, I am so glad that school is starting off well!! Praying it stays that way this year. Let Louis know that I am praying for Russ's family, and for George too. There are just too many loved ones going lately it seems. Stay well!
Love,
Patty and Jesse
Patty Taormino
Baltimore, MD United States
TUESDAY, AUGUST 12, 2008 10:38 AM, CDT
Misty, so sorry to hear the news about Rus. Will be praying very hard - especially for the family.
Hugs,
Elizabeth, Daniel and family
Elizabeth Schuepbach
Bern, Switzerland
MONDAY, AUGUST 11, 2008 08:36 PM, CDT
So very sad to hear about Rus, he and his family will definitely be in our prayers, along with George as well. Cancer is such an awful battle! Praying that he can beat it like I did!! It seems so many of us are losing loved ones lately. :-(
Love,
Patty and Jesse
MONDAY, AUGUST 11, 2008 08:21 PM, CDT
Misty,
I am so sorry to hear about Rus. As you know he did some beautiful carpentry on the house that we renovated on 40th street. What a talented carpenter he is. It is so hard to believe how quickly he went from running around loving life to being near death. Thanks again for reminding me to "enjoy this moment". It truely is the only one we have.Ethan loved playing with Will last week. Krystal, our summer nanny wears her braclet every day.
We love you,
Aunt Michele
Michele Burbank
TUESDAY, AUGUST 05, 2008 09:57 PM, CDT
Hey Will, Me and Ashley were checking in on you. Looks like you have been a very busy boy. I hope you are having fun on all your trips. We love you and hope you have a good rest of the week. Talk to you soon. Mrs. Renee'
Renee' Weidler
TUESDAY, AUGUST 05, 2008 06:28 AM, CDT
Justin and I look forward to seeing Will at OMES!! I hope this school year works out wonderfully for him! Tell Nicole 'hi' from Lexie. She wanted to talk with her yesterday, so she made me call y'all! Hope she'd doing great, too.
Hugs to you, Misty!
Andrea Lindenberg
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SUNDAY, AUGUST 03, 2008 06:20 AM, CDT
So glad you had a wonderful trip! The Wiggles are so cool, Jesse still loves the Hot pototo song...I think it was the first song he learned of theirs. I think of what a great sister Nicole is quite often. She has a special place in my heart. Will is so blessed to have her!
Love,
Patty and Jesse
Patty Taormino
Baltimore, MD
United States
THURSDAY, JULY 31, 2008 12:09 PM, CDT
Misty,
So excited to hear Will got to meet the Wiggles. We saw them in B'ham and loved the show. I am the only one finding it impossible to log onto the southernliving page. Tried it again today. The pics of Will on the horse is wonderful.
love and kisses
aunt Michele
Michele Burbank
THURSDAY, JULY 31, 2008 12:01 AM, CDT
Hello Luthcke family!!!
Glad to hear that your trip was such a success. Now mommy needs to bring Will, Nicole AND DADDY to Atlanta next week to go to SIX FLAGS OVER GEORGIA. YOU KNOW, THE PLACE WHERE THOMAS TOWN IS, FOR WILL, AND GO-CARTS FOR NICOLE!!!! Can't wait to see you all.
LOVE,
Uncle John
John Dorsey
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Marietta, GA
United States
WEDNESDAY, JULY 30, 2008 03:49 PM, CDT
It's so much fun to go to the beach...Two years ago we went out on a boat to see the dolphins and we really enjoyed seeing the dolphins jump...Glad that you had a good trip...
With Love,
Bryan, Angie & family...
Bryan Burbank
MONDAY, JULY 28, 2008 07:19 PM, CDT
Hey Will
We enjoyed meeting you this weekend!!!
The Wade Family
Hey Nicole andWill we had a great time with you. We'll keep you in our prays.
love Callie and Conner
Shelly Wade
Birmingham, AL
United States
TUESDAY, JULY 22, 2008 08:56 AM, CDT
Hi Will,
I wanted to tell you about a turtle that lives in my back yard named Henry. He eats grass and lots and lots of flowers that I grow for him. He is about the same size as a bowling ball (pretty big!). I will try to figure out how to send you some pictures of him but until then your daddy can see the kind of turtle he is on this website http://africantortoise.com/sulcata.htm
Have a great day,
Richard Miree
MONDAY, JULY 21, 2008 11:26 PM, CDT
Hey Will, I love your new pictures. You are so handsome. Tell sissy I can't wait to she her new braces. HAPPY BIRTHDAY to your mommy. Sorry your loser friend is sooooooooooooooo late on that one Misty. Thank you again for thinking of my daddy (George) and sharing your site with him sweet, sweet Luthcke family. I love ya'll. Renee'
MONDAY, JULY 21, 2008 06:00 PM, CDT
Happy birthday to you...middle sissy...I got my teal wristband today....it will go with everything! We are gathering Ala /Aub stuff over here from the Williams Bend Clan....Looking forward to all you have planned.
Much Love,
Aunt Michele
Michele Burbank
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MONDAY, JULY 21, 2008 03:35 PM, CDT
Way to go MISTY!!!! You are really rolling with getting the foundation started. You sure have worked hard to help our foundation through the run and I know you will do an awesome job with Miracle4Will. He is blessed to have such awesome family and friends. Best wished with your school meeting.
leslie jurado
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rock hill, SC
United States
MONDAY, JULY 21, 2008 07:52 AM, CDT
Happy Birthday Misty, we love you.
Bryan,Angie,Dawson,Garrett.
angie burbank
SUNDAY, JULY 20, 2008 11:12 PM, CDT
Hey,
I hope all is well! I am somewhat good on the computer so if you still need help uploading photos I will be glad to try! Also, Eric & I received the thank you card and it was very sweet. I would love to bring Dawson over to swim sometime so let me know when ya'll will be home. Talk to you soon.
Love,
Amelia, Dawson & Eric
Amelia Cordy
AL
United States
SUNDAY, JULY 20, 2008 10:39 AM, CDT
Hey Will! That's so cool that you got to ride the horse! Hope you're having a great summer.
Kelly Hollingsworth
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FRIDAY, JULY 11, 2008 07:57 AM, CDT
Misty, I am so sad I missed my two favorite things coming together, Will and horses!! You have to send pictures. We miss you guys so much and it just makes my day to hear how good Will is doing!!! I am having similar issues with uploading pictures so I may not be much help, we probably have the same camera! Keep on updating us, it makes us feel like we are not too far away!
Prayers, Love and Strength!
Shannon
Shannon Ready
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Daphne, AL
United States
FRIDAY, JULY 11, 2008 05:27 AM, CDT
Hey girl! Love story about Will and Levi! Tell we said congrats on the tooth, too.
As for your pictures upload issues, I have a close friend with a Caring Bridge site for her son. She's crams all sorts of pics and video on her's. I'll email you her name and number if you'd like her to walk you thru it. She would love to help out...very sweet person, like you!
Hugs!
Andrea Lindenberg
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THURSDAY, JULY 10, 2008 01:18 PM, CDT
so exciting to hear that Will rode a hourse ! wow...he has some much FUN. I tried to go onto the southernliving site and can't get it to work. Will you double check the info or site. Lucy(my assistant) couldn't do it either. Looking forward to seeing you all soon.
love and kisses
aunt Michele
Michele Burbank
THURSDAY, JULY 10, 2008 08:15 AM, CDT
Hey Will,
We are so proud of you for RIDING Levi!!! You looked like you had been doing it for years once you got up there. We need to start a weekly ride. It will help you in more ways than you will ever know. I look forward to our next ride. See you soon....love.
Rebekah, Jordan, and Sam ('dam')
Rebekah Regina
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WEDNESDAY, JULY 09, 2008 08:17 PM, CDT
Hi Will,
Wanted to say hi. You looked like you were having allot of fun on the forklift with Ben and watching the big trucks come in.
Best Wishes,
Richard
Richard Miree
TUESDAY, JULY 08, 2008 08:37 AM, CDT
Hi Luthcke Family!
Thanks for the update. We are so glad you had fun at the lake with family and friends. You all are such an inspiration and a great reminder to cherish every moment. God is good and he loves us more than we can comprehend. Thanks be to God. Nicole and Will, you are both such sweet little angels! We love you all. Praying for a cure.
PJ, Kelly, Ashley and Tanner
Kelly Tessmann
SUNDAY, JUNE 29, 2008 03:02 AM, CDT
I too am happy that you are keeping mom on her toes. I am glad you all are having a great summer.
Many hugs and prayers,
PAULINA JUMP
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Sparta, KY
United States
SATURDAY, JUNE 28, 2008 01:34 PM, CDT
Hi Will!! Just stopped by to see what you have been up to! Have a great weekend! Being active means you are keeping mom on her toes, which means you are strong and healthy, which we LOVE to hear!! Hugs!
Stacey and Lucas MPSIIIB
Stacey Montgomery
SATURDAY, JUNE 28, 2008 10:17 AM, CDT
Hello!
I just wanted to stop by to see how you have been and to wish you a wonderful weekend!
Ione, CA
United States
TUESDAY, JUNE 17, 2008 04:55 PM, CDT
Hey Will,
Hope you and your family had a great time at the lake. Thanks for stopping by my shop with your Dad recently. Please come back for a visit next time you're in the neighborhood. God Bless You!
Fonde
fonde taylor
MONDAY, JUNE 16, 2008 01:56 PM, CDT
Hello Will, I hope you are having a good day. We stoped by to see who won the four wheeler. Congrats Amy!! I have found some stuff for the Alabama-Auburn baskets and my friend Tiffany, who does paint classes, said she would love to donate some gift certificates for them also. Talk to you later little buddy.
Love you, Renee'
Renee' Weidler
MONDAY, JUNE 16, 2008 08:57 AM, CDT
Sorry we missed you guys at the lake. Ashley had her wisdom teeth cut out on Wednesday and wasn't up to staying for the weekend. I took a friend of mine down Saturday for an hour to look at a trailer that is for sale on the water. Hope she buys it. Brooks has a virus, Kristin thinks he got it at the pool. Hope Louis had a wonderful Fathers Day. I think mom is planning on coming to the lake this weekend with you guys. She is excited to see her new room. It will be good for mom to be able to spend some time with the kids. See ya this weekend. carol
Carol Wilson
SUNDAY, JUNE 15, 2008 01:02 PM, CDT
Hey Will,
Tucker, Lake and Ashley were checking your website out today. We just wanted to stop by and say hello. Tell your daddy we said Happy Fathers Day!!! Thank you so much for thinking about Da and putting him on your site, thanks Misty, that was so thoughtful and sweet of you, we love ya'll very much. We had so much fun at the garage sale and are already getting things ready for the next one. All I can say about the next fund raiser is ....WAR EAGLE... we will help in any way.
We love you little buddy,
The Weidlers
Renee' Weidler
WEDNESDAY, JUNE 11, 2008 07:27 PM, CDT
Hi Misty,
I'm sorry i missed the benefit walk donation cut off time. I received your letter from Michelle and then it got buried under stacks of other mail and papers. It resurfaced today when i sorted stacks.
I hope the fundraiser was successful for you. I think of you often and send positive thoughts your way. You may be interested in taking Will to Dr. Bob Apol who can perform a test to find what a person needs nutritionally. He may be able to help Will. His no. is 251-1251. I was tested and was found that i need to stay away from wheat and sugar. I was having persistent diarhea before test. I have it no longer and have tons of energy, sleeping better and thinking more clearly.
I will pray for your friend as well as you and Will.
Take care,
Karen Kendall
karen kendall
TUESDAY, JUNE 10, 2008 08:27 PM, CDT
Misty,
I am so sad to hear about Lauren. I feel honored that we got to meet her and her family.
The AU/AL party is a great idea. Sign us up. We will try to round up some signed footballs. Tommy Tuberville seems to be charitable in that way...we will have to see what Nick will do too.
Keep up the good work.
love and kisses,
Michele
Michele Burbank
TUESDAY, JUNE 10, 2008 04:49 PM, CDT
Hey there, Luthcke's!
It's me again, just dropping in to get an update on you. Misty, I think a silent auction is a SUPER idea! I have painted small paintings for other functions as well (Lifeline Adoption) and am happy to do one for you. Would you mind calling me once you get dates/venue/etc. settled up? I'll bring it by your place whenever you need it.
Hope y'all are doing good and staying out of the heat. YIKES...it's so hot these days! ;-)
Love to All,
Marni Ulch
Marni Ulch
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Vestavia Hills, AL
United States
MONDAY, JUNE 09, 2008 02:06 AM, CDT
Hi Misty!
Stop by to see how you guys are doing and to tell you, it was great meeting your family at SC. I love the time we share and missing you guys already. I hope to see you guys again soon. Will is such a cute boy. I love the family picture at the beach.
Glad to know the fundraising turn out great. I am so amazed to know all the hard work you doing. May GOD bless you and i do pray hard for miricale 4 Will and for all MPS kids. Amen. I love the T shirt you made.
Lots of love and many hugs your way.
Tayyaba Beg
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NJ
FRIDAY, JUNE 06, 2008 04:40 PM, CDT
Louis just learned of Will's condition and wanted to let you know that I will keep your family in my thoughts and prayers.
Robby Boozer
Athens, AL
TUESDAY, JUNE 03, 2008 01:25 PM, CDT
Hey, Misty! I'm so glad y'all had a good turnout and a good time at the yard sale...it had to be just hotter than blazes! I left a big ol' box of stuff for you toward the back of the parking lot, since the trailer had been removed from its space. Anyway, hope you got it and were able to sell some of it and use the funds for MPS research.
Kevin and I think of y'all everyday and hope you're well. We're praying for a cure.
Keep in touch and let me hear how Will (and y'all) are doing.
Love to All,
Marni Ulch
Marni Ulch
Vestavia Hills, AL
United States
TUESDAY, JUNE 03, 2008 10:18 AM, CDT
Hello,
I just wanted to pop in and say hello and to let you kow that I was thinking about you!
Ione, CA
United States
TUESDAY, JUNE 03, 2008 08:30 AM, CDT
Hope to see you at Challenger Ball in the fall. I thought we had a great spring season this year.
Lynn Prichard
Bham, AL
MONDAY, JUNE 02, 2008 11:20 AM, CDT
It was great seeing everyone at the sale on Saturday. Our daughter, Lily bought a pair of 'Lil Bratz' PJ's. We got them home and she tried them on and they were too little for her. Lily said, 'That's OK, Mommy...our money is helping the people that are finding a way for Will to get better soon". That was pretty powerful coming from a 6 year old. She told our friends yesterday all about going to the sale and how our money is helping Will. We love ya'll. Tina, Donna, Lily & Oliver
Tina DiGiorgio
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Hoover, AL
MONDAY, JUNE 02, 2008 05:48 AM, CDT
Just checking to see how the sale went!!! Hopefully all went well, and it brought in lots of $$$ to get you started!!
Love,
Patty Taormino
Baltimore, MD
United States
SUNDAY, JUNE 01, 2008 03:52 PM, CDT
It was wonderful to meet all of you at the run/walk. Will, it is obvious that you have an adoring fan club as well as a loving and devoted family. Thank you for coming such a long way to spend the weekend with us. I hope we will meet again in the not too distant future.
Cathy Abernathy (Isabel's grandmother)
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Chester, SC
WEDNESDAY, MAY 28, 2008 07:04 PM, CDT
It was so great to finally meet you all in person! Will reminds me so much of Jesse when he was that age. What a fun age, (but tiring at times, LOL!) Nicole you are the best sister ever and also friend to Jesse. I think he really likes you! (((HUGS))) I hope you all find the dog "Pringels" at the pound or wherever!! That story made me laugh for a while.
Love you all, hope to see you again in the near future..tell everyone else hello from us as well.
Patty Taormino
Baltimore, MD
United States
TUESDAY, MAY 27, 2008 08:41 PM, CDT
Hey Will, I am so glad you had such a good time on your trip. It sounds like your sweet smile made everyones day. I love you little buddy!
Renee' Weidler
TUESDAY, MAY 27, 2008 08:38 AM, CDT
Hey Will and family! It was so nice to meet you this past weekend. You are such a sweet boy with such a sweet family. Thanks for making the trip and raising so much money.
Liz Hindson (Izzy's aunt)
Elizabeth Hindson
MONDAY, MAY 26, 2008 09:12 PM, CDT
Hi Will!
I am so glad I got to meet you this weekend! I had such a great time playing with you and Nicole at Carowinds, at the run, and in the hotel...I will have to come to Alabama and visit you all! :)
Many hugs and kisses, and lots of love,
Leslie
Leslie Phillips
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Winston-Salem, NC
United States
MONDAY, MAY 26, 2008 02:18 PM, CDT
I am so pleased to meet you all through the newsletter you sent home with the Lakeside kids. Two of my 3 kids are at Lakeside, and we received the newsletter about the Charity Yard Sale in their backpacks. We got together a few thing for the sale and left them at the trailer. I wish you much success with the fundraising!. You are now in my thoughts and prayers, both for Will's wellbeing and for a cure for MPS in general. I had not heard of this disorder before, and I am so happy that you are doing your best to raise awareness. That, after all, is how a cure can finally be found. God bless you in all of your efforts, and God bless Will. We hope to meet this incredible little boy one day!
Brian, Shea, Emily, Alex, and Mary Frances Pitts
Shea Pitts
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MONDAY, MAY 26, 2008 08:52 AM, CDT
Hey Will! I'm so glad I finally got to meet you. You are just as cute and sweet in person as you are in your pictures. I so much enjoyed getting to meet your amazing family and friends. I hope that Carowinds was tons of fun, and that you had a great time with all of your Sanfilippo friends. Hope to see you again soon sweet boy!
Kelly Hollingsworth
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Rock Hill, SC
SUNDAY, MAY 25, 2008 08:56 PM, CDT
Hi Misty
It was nice to meet you, Louis, Nicole and Will in person. You guys are such an awesome family and obviously so in love with Will. Thank you so much for making the journey to SC to be with us for the run/walk and THANK YOU for the amazing donation of over $2,800 that you were able to gather through walk sponsorships for The Isabel Jurado Foundation. Very impressive and so appreciated!! I pray that your day at Carowinds was nice and that your ride home went smoothly. Will is such a special child and I know that he has much to teach us all. Thank you for sharing his/your life with us through this site.
leslie jurado
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rock hill, SC
United States
SUNDAY, MAY 25, 2008 06:50 AM, CDT
Hi, Sweet Family! Just wanted to say hello to everybody and let you know that we are praying for y'all and for a cure for Will. Misty, I'm gathering stuff everyday for the big yard sale and can't wait to see y'all. Hope your trip to SC was great. Be safe on your way home, and I'll see you soon.
Marni Ulch
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Vestavia Hills, AL
United States
FRIDAY, MAY 23, 2008 12:25 AM, CDT
Hi Misty
Just stopped by to introduce myself - I'm Ria - I have a daughter Jasmin with MPS3A. What a handsome little boy you have!
Ria Heap
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England
United Kingdom
THURSDAY, MAY 15, 2008 07:32 PM, CDT
Thank you Will and Nicole for teaching me more about MPS. We have added you to our prayer list. I hope you have a great summer.
Camren Wood and Family
LeAnn Wood
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hoover, AL
United States
TUESDAY, MAY 13, 2008 08:22 PM, CDT
Hey Will and Misty, I am counting the days till the 24th. I hope you all had a wonderful Mother's Day!!
Lots of love your way!!!
Patty Taormino
Baltimore, MD
United States
TUESDAY, MAY 13, 2008 08:22 PM, CDT
Hey Will and Misty, I am counting the days till the 24th. I hope you all had a wonderful Mother's Day!!
Lots of love your way!!!
Patty Taormino
Baltimore, MD
United States
MONDAY, MAY 12, 2008 11:19 AM, CDT
Misty,
Mother's Day was wonderful. The greatest joy in my life is being a mother...being a sister and an aunt run a close second and third. We are looking forward to a busy May. Will has brought us together is such a wonderful way. The bake sale/garage sale has helped me jump start my Spring cleaning. The walk/run has helped me jump start my exercising. Plus we will get together at least 2 times this month. One day we will start that "family night " weekly that we have been talking about for years now. My office has already donated for the run...I will get it to you this week.
Love and kisses,
Aunt Michele
Michele Burbank
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MONDAY, MAY 12, 2008 10:34 AM, CDT
Happy mothers day...We had a great time watching your ball game Will...You got a hit and scored a run...Everyone was having a great time...Bryan, Angie and family...
Bryan Burbank
SUNDAY, MAY 11, 2008 11:31 PM, CDT
Dear Misty,
It is so great that you feel that way. Keep up the love and appreciate your family daily. Without them, you are absoutely right, we are nothing. I lost my mom about ten years ago, and I try to always remember the love she left behind through her children. Happy Mothers Day to all the wonderful mothers who have been blessed by their children, and pray that the search for a cure is just around the next corner.
With love to you and your family,
Respectfully,
John Dorsey 5/12/08
John Dorsey
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Marietta, GA
United States
TUESDAY, MAY 06, 2008 09:29 AM, CDT
Hey Will, You are not going to believe all the things we are getting together for your sale. It is going to be so much fun. I loved watching you at your game the other day. Make sure mommy puts the times of all of them on here for us to see o.k.? We want to come back to see you play more and maybe next time we can go get some ice cream yum!!!!!! Have a good day I hope I get to see you today... I have to come get some stuff from mommy. Love you ..... Mrs. Renee'
Renee' Weidler
SUNDAY, MAY 04, 2008 03:11 AM, CDT
Hi there Will!! I love your pictures. Glad you are doing well. Many hugs and kisses!!
Paulina and Andrew
PAULINA JUMP
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Sparta, KY
United States
SATURDAY, MAY 03, 2008 11:10 AM, CDT
Hello Will,
Mrs. Renee' finally got here. I am sorry it took so long. Do you know how much you are loved? Your family loves you so much. WOW... All mommy does for you. We can keep up with everything going on in your little life through this. Thanks Mommy!!! You are so handsome in your pictures on your web site. You are such a happy little boy all the time. I wish everyone in the world could smile just half the time that you do. Nanny and Da ask about you all the time. Maybe you can go visit them soon, they would love that. We are planing on coming to your baseball game tonight. I hope it does not get rained out. I will call mommy later and see. Tucker, Lake and Ashley want to tell you something but Tuck spent the night with Nanny and Da last night so I will let them sign on tomorrow. O.k. Will, have a good day and we will see you tonight. PS.........Nicole I want you to know you are the bravest, strongest and sweetest little girl and big sister in the whole wide world. You letter to your little brother broke my heart in the best way a heart can be broken. You are an inspiration to everyone. Love ya'll... Renee'
Renee' Weidler
TUESDAY, APRIL 29, 2008 10:17 PM, CDT
Hello Luthcke family, I pray for you all, as a family, daily. Your family is an inspiration to me. The adults are dealing wtih the diagnosis and the children are going about their business. Will has a perpetual smile and Nicole is Nicole. She is a solid rock in the wall of life. She will not falter because she loves her family and most especially her brother. I pray for childlike faith and hope. Thank you God for Nicole and the Luthcke family. Will is blessed and we are blessed in knowing him. He is a very special child and anyone who is touched by his smile is changed....for the better. I pray we all have a moment to understand Will and are changed by what we feel.
kelly hamer
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MONDAY, APRIL 21, 2008 09:38 AM, CDT
Hello Will,
Trying to catch up with all of our friends as Tyler and I have been sick.
I loved what your sister Nicole wrote, you are both so special and loved.
Kisses from Hershey,
Donna Kay Langan
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Hershey, PA
United States
SUNDAY, APRIL 13, 2008 01:33 AM, CDT
Dear Nicole and Will,
You are BOTH SO SPECIAL!!!! The Love that you share for each other is never ending, and God has blessed each of us that are touched by you and your little brother.
With Kleenex in hand
Uncle John
John Dorsey
Marietta, GA
United States
FRIDAY, APRIL 11, 2008 08:58 PM, CDT
DearWill,You are so sweet to me and you always have a big grin on your face.You love to dance and play with me.I love you and I know you love me .You are so cute especially when you smile.I love you for who you are. I know you don`t mean to hit me you are just having fun with me.You are so kind and gentle with me.I love you more than enyone on the face of this world.
Your sister,Nicole
MONDAY, APRIL 07, 2008 10:27 AM, CDT
Misty,
I do remember sitting with you on "Good Friday" of last year with the news. The way you and Louis have tackled this new life is inspiring to me. I would love to help sponser you on the walk. How exactly do I do that ? Can I just mail a check to your home address, check made out to who/what orginazation.
Stay strong,
Michele
Michele Burbank
MONDAY, APRIL 07, 2008 04:57 AM, CDT
Dear Willzbear...you are so special to me and have given my life a whole new meaning...I love you very much. You know that you had me wrapped around your finger from the very first time that you flashed that dazziling smile at me. Thank you Misty and Louis for allowing me to be a part of a wonderful, loving family. Nicole is a treasure, and the love and patience that she shows for her brother is quite a breath of fresh air in this stale world that we live in...keep up the good work.
Always,
John Dorsey (Uncle John)
John Dorsey
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Marietta, GA
United States
SUNDAY, APRIL 06, 2008 06:49 PM, CDT
So glad all is well there! (sorry about the1 year anniversary, hopefully you'll get like me one day and forget how many years and just enjoy each day!) We too had baseball this weekend. We did not expect our team to win with everyone being so new, and a new coach too. WOW.. they won in the 9th, LOL! Always a surprise somewhere. Can't wait till May 23 - 24th!! We'll have a wonderful time!!
Love and hugs,
Patty Taormino
Baltimore, MD
United States
MONDAY, MARCH 31, 2008 03:18 PM, CDT
Misty,
What wonderful news ! I am so glad you all had a good day. I was talking to my attorney friend Jennifer. She said to go to Bizfilings.com and it will give you all the info on starting a non-profit. She said that the sec of state also had a great site to answer questions. She will be available to help any way.
love and hugs
Michele
Michele Burbank
SUNDAY, MARCH 30, 2008 01:46 PM, CDT
Misty, I am so glad he had fun at his 1st game! I can't wait to come to see him play! Sounds like he has some really great cheerleaders to back him up. I'm also looking forward to joining y'all at the walk in South Carolina...and have 3 big bags of clothes for the yard sale. You are such a good Mama. Keep up the good work and keep the faith. love, Judy
Judy Johnson
Birmingham, AL
United States
SATURDAY, MARCH 29, 2008 09:31 AM, CDT
GOOD LUCK TODAY AT YOUR FIRST GAME!!
I AM SO EXCITED FOR YOU I CAN'T SIT STILL!
POST lots of PICTURES MOMMY!!
Stacey and Lucas MPSIIIB
Stacey Montgomery
TUESDAY, MARCH 25, 2008 08:14 PM, CDT
Misty,
I was walking out of Target today and noticed a sign they have up. They pledge 5% of thier earnings to local charities. That was $3million last week they say. I am so impressed....soooo while it might not be $3mil....I pledge 5% of my earnings this year to the research for Will's disorder. Let me know where I need to send the checks. Put it up here on your site and maybe someone else will be compelled to do the same. I love you all so much.
Sincerely,
Eldest
Michele Burbank
MONDAY, MARCH 24, 2008 01:30 PM, CDT
Misty,
Hi-I hope ya'll had a nice Easter! I am excited about the yard sale because I think it will be a huge success. My office and I are getting some items together and putting them in a storage unit here. I am hoping to get the word out to our residents so they can participate as well! Talk to you soon.
Love,
Amelia & Dawson Cordy
Amelia Cordy AL United States
SATURDAY, MARCH 22, 2008 08:04 PM, CDT
Hey Will, Congratulations on playing on the Challenger team. How exciting that must be!! I can't wait to meet you in NC in May!
Meanwhile you all have a very wonderful and Blessed Easter Holiday!
Love,
Patty Taormino
Baltimore, MD
United States
SATURDAY, MARCH 22, 2008 04:17 PM, CDT
misty,
WOW do we have items to donate! Can we just start bringing them over to your garage. This time when I move I am not taking the stuff I have dragged around for 22 years. I would love to join you at the walk . When is the date ? We love you and are looking forward to cheering for Will.
c u soon,
eldest
Michele
Michele Burbank
SUNDAY, MARCH 16, 2008 08:24 PM, CDT
Hi Misty,
I really enjoyed meeting and working with you at the book fair at school. Thank you for sharing Will's story with me...I felt such a closeness and compassion for you and your family. I hope to get to know you better...you are an inspiration to those around you!
Cissy Goodspeed
Cissy Goodspeed
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THURSDAY, MARCH 13, 2008 02:35 PM, CDT
Hey Middle Sis,
I finally have a working computer!!! Your website is wonderful and filled with great things about Will. I really do want ya'll to come to the egg hunt on Sunday and Will will not "bother" anyone plus he will have his cousins there to play with. I can now keep up with all the people you have told me about and ya'll too. I will see you soon or talk to you soon....love
Rebekah
Rebekah Regina
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WEDNESDAY, MARCH 05, 2008 09:03 PM, CST
Being the straight forward, candid person that you are, one thing we know for sure... she didn't misunderstand what you told her. She disregarded what you told her. That is inexcuseable. If the "teachers" don't understand the situation, they should be expected to research it. And they should be held accountable. For both their lack of information and/or their disregard. Thankfully, Will treats every minute like a new experience and he won't hold the grudge that I would... and that you will. Hang in there! Love,
Diana Contorno
Birmingham, AL
WEDNESDAY, MARCH 05, 2008 08:08 AM, CST
Hey Misty,
I think you know my opinion on this subject. You probably handled it better than I would have. Will is your child and you are the one who dictates how Will is disciplined. You are absolutely correct!! If you have no say in how the school would handle this situation then you should have been informed of this. I love you all dearly and I wish I was there to be able to help you with all of this. Keep up the good fight!
Shannon Akers
TUESDAY, MARCH 04, 2008 02:47 PM, CST
Maybe the teacher just does not understand the circumstances...I am sure the teacher would not want her child treated the same way...I have never had to restrain Will for any reason nor would I ever...These things hurt the parents more than the childern...Hang in there...I believe things happen for a reason it will work out better this way... With LOVE, Bryan, Angie & family...
Bryan Burbank
TUESDAY, MARCH 04, 2008 01:07 PM, CST
Misty,
I am shocked about the teacher's behavior. I can't imagine that it took TWELVE minutes for Will to calm down. The few times that I have kept Will, without you there, he has been an energetic angel. Diversion is the best tactic. I do believe when God closes a door that He will open a window. Let's keep a look out for Will's wonderful window. The new pictures are great. I am excited that Ethan and I are on the page !
love and encouragement,
Michele
Michele Burbank
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TUESDAY, MARCH 04, 2008 10:39 AM, CST
Misty--
I am appalled by this! You are right on for removing him from that woman's care. She should have researched Will's illness and became educated on what would work and what would not. And she should NEVER touch your child when you told her it was unacceptable. Good luck with the homeschooling help! Let me know if you need any help finding info/tools, etc. My cousin is a teacher and has lots of insight/materials if you need them! Hope everything works out best in the long run! Hang in there and give the kids kisses from us!
We love you guys!!!!!!!!
The Collins family--Brett, Erin, Hunter, Holden and Ava
Erin Collins
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Goldsboro, NC
United States
TUESDAY, MARCH 04, 2008 10:04 AM, CST
Misty,
Short and sweet!! This si totally unexceptable punishment for Will in a school setting. He should have a 1:1 aide who is assigned to him and him only. The only tactics that will work, is swift correction of a firm NO, then diversion.. but most of all, our l=kids need to move about, they cannot sit for extended times of more than 10 -20 minutes in most cases without expressing behavior that they want to ge tup and go. Jesse teacher recently provided him with a hard foam type brick, attached to a 18 inch string and tied to the front of his desk. When he become aggitatated for a short term sitting, he can take his brick and smack it on the desk or chew it and or throw it since it is tied. If he doesn't change his beahior in 5 minutes of getting that, then he can go for a walk with his aide. He walks aroind the school halls at least 6 x a day!!
Diversion and moving about are important with only short focused positive instruction!
Love,
Patty Taormino
Baltimore, MD
United States
THURSDAY, FEBRUARY 28, 2008 04:56 PM, CST
Hi! We will be playing challenger ball with you this year. Our son Josh has a very similar condition to Will. I am looking forward to meeting you!
Lynn Prichard
Bham, AL
MONDAY, FEBRUARY 25, 2008 03:28 PM, CST
A rather belated birthday wish here Will. I hope you had a wonderful day and that your year is full of sunshine.
(So sorry to hear about your friend Misty. Will pray of course.
love
Elizabeth and Daniel
Elizabeth Schuepbach
Bern Switzerland
SATURDAY, FEBRUARY 23, 2008 09:50 PM, CST
Happy Birthday Will! I am sorry that I missed the birthday party. Aunt Sharon told me that you really enjoyed the nerf rockets . Can't wait to play with them at the lake at the lake with you. See you guys soon. Aunt Carol
Carol Wilson
FRIDAY, FEBRUARY 22, 2008 11:25 AM, CST
Misty,
Last time I saw Laura, it was very hard to see her being so sick. I just keep reminding myself that she is at peace now and we will see her again. She will be looking young and energetic just like the last time we served her a pizza at Papa Joe's. Here is another reminder for us to enjoy the day...to encourage and uplift one another...none of us ever know. You are certainly a center of love...always doing for others and giving of yourself. Hope you are feeling better. I look forward to seeing you, Will, Nicole, and Louis this weekend.
love and hugs
Michele
Michele Burbank
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FRIDAY, FEBRUARY 22, 2008 10:19 AM, CST
I am so sorry to hear of the Aycock's loss. They are in my prayers.
We love and miss you all..
Shannon
Shannon Ready
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Daphne, AL
United States
TUESDAY, FEBRUARY 19, 2008 08:11 AM, CST
I just realized that it was awhile since I signed your guestbook.
I wanted you to know that I'm thinking of you today, and always.
Love from Vibeke
vibeke Hovd
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Skaun, Trondheim
Norway
FRIDAY, FEBRUARY 15, 2008 12:06 PM, CST
HAPPY BIRTHDAY WILL!!! Big hugs to you Misty. This diagnosis is so very hard as it changes your perspective on birthdays for your child. It should only be joyous but then you are just reminded that time is passing too quickly. I wil be praying for you Misty.
leslie jurado
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rock hill, SC
United States
MONDAY, FEBRUARY 11, 2008 04:22 PM, CST
Happy birthday Will!!! I wish I could figure out a way to box up all this snow we have in Iowa and send it your way for your Birthday!!!!
Misty ~ MPS is cruel. It plays with your emotions and toys with your faith. Even on my best days... it creeps in my mind. But don't let this disease pave your path of life. Our kids our a gift....Even when I am in the worse mood, all Lucas has to do is slobber on my cheek (or what ever part of my face his aim hits ~sometimes it is my ear) and bat those big brown eyes and I am better in an instant. I try to cherish each second.......the good , the bad, the kisses full of slobber!!!
Hang in there.....
Stacey and Lucas MPSIIIB
Stacey Montgomery
Cedar Rapids, IA
SUNDAY, FEBRUARY 10, 2008 04:06 PM, CST
Happy Birthday Will!!! I hope you enjoy your special day, and I know that if you're like my Luke, you will certainly enjoy the CAKE!! That is -- without a doubt -- Luke's favorite part!
Misty -- I promise it does eventually become easier to accept. But, like you are having to experience this year, every birthday we've celebrated since Luke's diagnosis, we've had this "THING" hanging over our heads. Just knowing that we have limited time helps us to keep things in perspective and to NOT take Luke (or his unaffected sister, Sarah) and the time we have with them for granted! Consider that part a blessing!
Luke's 5th birthday was also our first w/ diagnosis. I certainly know where you're coming from! Hang in there. You will learn so very much from Will. He truly is a gift from God!
Happy birthday, again, Will! With love from Luke and his family!
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Moody, AL
United States
SUNDAY, FEBRUARY 10, 2008 03:54 PM, CST
HAPPY BIRTHDAY WILL!
I pray everyone feels better soon and you can all enjoy a good party!!
Love and hugs,
Patty Taormino
Baltimore, MD
United States
SUNDAY, FEBRUARY 10, 2008 03:36 PM, CST
Happy birthday Will...We will see you at the birthday party...We are so proud of Nicole for running the Mercedes marathon...Hope that you are feeling better...Tell everyone we said hello...
With love, Bryan, Angie & family...
Bryan Burbank
SUNDAY, FEBRUARY 03, 2008 11:59 AM, CST
Misty,
Thank you so much for keeping up with Frankie. We've had a rough month! We're hoping (and praying) for a better February.
Thoughts, hugs and prayers are with you,
Cynthia, Frank & Frankie
Cynthia DeMatteis
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Hamden, CT
MONDAY, JANUARY 28, 2008 04:07 PM, CST
Hi Misty,
Just wanted to make contact. So sweet that you find Daniel an inspiration. He may be hard work at times but he certainly is the greatest blessing in the world. I'll pray young Will keeps healthy and strong too. You have a lovely family.
Big hugs from us all
Elizabeth
Elizabeth Schuepbach Bern Switzerland
THURSDAY, JANUARY 24, 2008 12:15 PM, CST
Hi, Misty! I stumbled on your website via Lucas Montgomery's site. Glad to find ya'll! I, too, have a son with Sanfilippo. Luke is 8 1/2 and doing quite well. He was diagnosed 10/3/03. We live just outside of B'ham in Moody, and I'd love to meet you! Someone told me shortly after Luke was diagnosed that I would be amazed at the number of blessings that would come out of this. Of course, my first reaction was, "How dare you tell me there will be blessings from this death sentence!" However, as time passed, I realized how true those words were. We're so blessed in so many ways, thanks to Luke. While life is sometimes difficult and always challenging, I wouldn't trade it for anything. He has taught me so very much.
If you would like to meet, send me a note and we'll plan something. Okay? :)
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Moody, AL
United States
TUESDAY, JANUARY 22, 2008 10:18 AM, CST
Oh yea,
Tell Nicole that Lucas has made his big sisters the best players when it comes to dodgeball! They are always the first to get picked for teams. (hahaha)
They are so good at dodging flying objects that sometimes I think they have a third eye on the back of their heads!! But they of course love the little brother more than anything in world, despite the toy war wounds!
Stacey Montgomery
TUESDAY, JANUARY 22, 2008 10:11 AM, CST
Yeah, we are laughing here in Iowa :-)! We have over a foot of snow here, school has been cancelled today and we have been homebound since Friday. This weekend the wind chill took us to -15 degrees!! I have a terrible case of cabin fever.
I love the photos! You have a beautiful family!
Take care!
Stacey Montgomery
Cedar Rapids, IA
TUESDAY, JANUARY 22, 2008 12:28 AM, CST
Hi, My name is Jenna and I came across your page. Will, is a real brave and courageous fighter. He is an inspiration and will be in my thoughts and prayers.
caringbridge.org/visit/champ291
Jenna Fowler
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Kamloops, BC
Canada
MONDAY, JANUARY 21, 2008 04:57 PM, CST
I heard you all were getting snow on our local news up here!! That is so cool!! (literally) LOL! Glad you had that trial run also so you will be prepared for your trip coming up!! Watch out for thos kicking feet.. We used to take Jesse's shoes of whenever he woud go into kicking stages. It would hurt him more than us usually. It worked most times, of course we'd give him the firm "No Kick" words in our mean voice too. Fortunately that stage was short lived for us!! Praying it is for you too. Have a wonderful ski trip!
Love and hugs!
Patty Taormino
Baltimore, MD
United States
FRIDAY, JANUARY 18, 2008 02:55 PM, CST
Hi -your page caught my eye from the MPS forum cause my boy is called Will too! Although he has MPS2
I hope your Will gets used to his hearing aids soon HUgs Laura and Will
Laura Brodie
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Birmingham
United Kingdom
WEDNESDAY, JANUARY 16, 2008 10:04 AM, CST
Mom said she had a great time staying at the lake with Louis and Will this past weekend. I am glad he is over that virus he had. Hopefully when his ears are better he will leave the hearing aids alone. Can't wait till it gets warm again and we can spend more time at the lake. Aunt Carol
Carol Wilson
TUESDAY, JANUARY 15, 2008 04:31 PM, CST
Hi Will,
Uncle Mickey and I had so much fun Saturday playing T-Ball with you at the lake. You sure can use that bat and hit that ball far. Wish we could have visited on Sunday, but the boat was almost out of gas. We are looking forward to the next time we get to go to the lake. Sunday night we had to take Mike to the emergency pet clinic. Don't worry, by the time we got to the clinic he was just fine. They couldn't find anything wrong with him. He seems in good health and I know he misses seening you.
Love you ,
Aunt Sharon
Sharon Greene
Hoover, AL
United States
TUESDAY, JANUARY 15, 2008 04:27 PM, CST
Thank you so much for your prayers and concern for our Lucas! All I can say is he has many Angels watching over him and listening to our prayers. His turnaround has left me overwhelmed with emotion. It means that I have to now work twice as hard on the awareness piece and fundraisers for MPS research. I believe that is what we are meant to do. Families should not have to endure the heartwrenching progression of this disorder..........
Hopefully Will will begin to accept his hearing aids...it took Lucas several YEARS...but I know it will not take your little guy that long. He is so adorable!
Take Care!
Stacey and Lucas
Stacey Montgomery IA United States
SATURDAY, JANUARY 12, 2008 04:07 PM, CST
Hi Will,
I am so glad to hear you're a happy guy even when not feeling your best. Jesse is generally the same way. It takes a lot to make him unhappy. I hope you feel better soon. Be nice to Nicole.. no tesing her with those nibbles. LOL! Just nice hugs and kisses!!
Love,
Patty Taormino
Baltimore, MD
United States
FRIDAY, JANUARY 04, 2008 01:45 AM, CST
Best wishes to your family!!!! Happy New Year!!!!! www.caringbridge.org/visit/hannahtheriot
Kristen Theriot
gonzales, LA
United States
WEDNESDAY, JANUARY 02, 2008 07:48 PM, CST
Misty,
The holidays that we all shared were wonderful. I received a gift from Will , he reminds me ...to enjoy this second. Years ago I read "A Man's Search for Meaning" by Victor Frankel. He wrote that his experience in the concentration camp "was wounding yet enriching at the same time". I believe this illness brings the same double edged sword. I have relished every minute spent with Will. I also have felt an intense thankfulness daily for my son's health, smiles, kisses, accomplishments.....Thank you for being so strong and sharing with us the true meaning of the holidays.
Love always,
Michele
Michele Burbank
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WEDNESDAY, JANUARY 02, 2008 11:00 AM, CST
Mom said she had a great time at dinner the other day. I hope all of you had a Happy New Year. We made it back from Louisiana, but I think Bill has the flu. He has gone to the doctor today. Louis told me he is sick. Hopefully none of the kids will get sick. Hope to see all of you soon. carol
Carol Wilson
TUESDAY, JANUARY 01, 2008 07:27 PM, CST
Happy New Year! We love ya'll!
Amelia, Dawson, Angie & Bryan Burbank
Amelia Burbank
AL United States
SUNDAY, DECEMBER 30, 2007 06:25 PM, CST
Hey Will (and Misty) So glad your Christmas went well! Thanks for helping ours be so nice! We loved everything you sent! You are such a blessing! I hope you all have a blessed New Year! I know we are looking forward to a better 2008 than the later half of 2007 was.
Love you all!
Patty Taormino
Baltimore, MD
United States
FRIDAY, DECEMBER 28, 2007 11:23 PM, CST
Hello!~ I was directed to Will's website through Patty! She was right...Will is ADORABLE!!
Stay strong. We have faith and hope that our fight for a cure is just around the corner. Our son Lucas is 10. He has sanfilippo - b and we have been using genistein for over a year. He has not regressed. We have only seen improvements in many areas...cognitively,socially and behaviorally. I know how hard it is to stay strong for Will's siblings...we have 3 older girls who are not affected. I always make excuses to why I can't watch old videos of Lucas when he is younger. I don't want them to see me sad. I want them to see me positive and strong...doing everything I can to help our (MPS) kids !! Big hugs!!!
Stacey and Lucas MPS IIIB
Stacey Montgomery
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Cedar Rapids, IA
United States
WEDNESDAY, DECEMBER 26, 2007 03:51 PM, CST
We all had a wonderful Christmas. Will and all the family came to our house on Christmas Eve night. He was a little gentleman all night, but was too excited to eat very much. After we ate we all opened gifts. Later,Will, Connor (Will's cousin) and I played games in the basement, and of course we played with Mike and Enzo (the family dogs), Will's buddies. We all had a great time.
Aunt Sharon
Sharon Greene
TUESDAY, DECEMBER 25, 2007 08:45 PM, CST
Merry Christmas!
Kisses from Hershey
Donna Kay Langan
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Hershey, PA
United States
FRIDAY, DECEMBER 21, 2007 07:35 PM, CST
Merry Christmas to you from Australia!
God Bless and i wish you a happy and safe year ahead.
francis family
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FRIDAY, DECEMBER 21, 2007 01:26 PM, CST
your aunt mae and all of her family are praying that every thing will change for the better we all love you will .
edgar campbell
THURSDAY, DECEMBER 20, 2007 05:01 PM, CST
Hey guys! Thank you for keeping us updated on Will and Nicole. We miss all our Lakeside friends!
I came across this saying a few weeks ago and it has really made me think about our little ones and how fast the time goes by. "Enjoy the little things, for one day you may look back and realize they were the big things". May we all remember how precious our time is with our babies.
I hope you and yours have a very Merry Christmas season.
Love, Tina, Samuel, Olivia and Wes Brown
Tina Brown
birmingham, AL
United States
SUNDAY, DECEMBER 16, 2007 07:54 AM, CST
Misty,
I just want say THANK YOU from deep within my heart! You are such a blessing! May God pour out his miracles and blessings on you and your family for your kindmess and genoristy! Especially on Will. I know just hard it thinking about the future sometimes. I do believe God has a plan and it is a better than we may know!
Love and hugs to you all, You do make a difference!
Patty Taormino
Baltimore, MD United States
WEDNESDAY, DECEMBER 12, 2007 11:46 AM, CST
I am Justine's little sister and she has been giving me updates on everyone and especially Will. Please know that you all are in my thoughts and prayers.There are so many people out there that you may never meet that are thinking about you and keeping you in their daily prayers. Take care, Jesse
Jesse Amicangelo
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Spring Valley, MN
MONDAY, DECEMBER 10, 2007 08:48 PM, CST
Hi Misty,
I just wanted you to know that we are thinking about you and that we love you. I hated missing Thanksgiving this year. It sounded like a wonderful day. Once we can get 2 days off together, we'll come up for another visit. The kids are missing their cousins! Give everyone hugs from Uncle Keith and Aunt Justine and know that we are praying for you.
justine
Justine Amicangelo-Burbank
SATURDAY, DECEMBER 08, 2007 10:00 AM, CST
Misty, Good morning. As I read the entries and guestbook I cry but am filled with hope for you. The families across the country who share this seem to be wonderful. I am encouraged for you and the information exchange and just the words of pure love and hope. I feel as Cooper's mother does everyday is to cherish. I know the thought of the future and his pain never leaves your mind but when he says "Santy Claus" I hope that fades away for awhile...just seeing him light up when I come in is something that makes my heart soar. I love you all so much and am always here or there if you need me. Please don't hesitate.
Kelly
kelly hamer
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SATURDAY, DECEMBER 01, 2007 07:20 PM, CST
Dear Misty,
As I read your journal entries, I find myself shaking my head in agreement. I too, am walking down this road of MPS III A with my 3 year old son Tyler who was just confirmed in Aug 07. Looks like we were at Duke 2 weeks before you.
Misty, I know firsthand there is nothing I can say to you to make the pain, despair and grief go away. I myself experience ups and downs everyday. I have found strength through other MPS families and sounds like you will too. Keep the hope and faith.
As for the Christmas tree dÈcor, I had a similar incident today. As I unwrapped small trinkets I had gotten for Tyler last year before we knew I felt complete discouragement. How can I do this I thought? Then I read another MPS Momís journal entry about how much she enjoyed seeing her son pulling on the tree and she made me realize if you lose an ornament, or pull down the decorations, they are only things. Youíre not at a loss; youíll gain memories so make them happen today.
Hugs and Love from Hershey,
Donna Kay Langan
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Hershey, PA
United States
WEDNESDAY, NOVEMBER 28, 2007 03:47 PM, CST
Misty,
I just read your most recent journal entry, and I am grieved at what you are having to go through. There is nothing worse or more painful in this world. And I know the holidays are making it even harder. I pray for you, Will, Nicole, and Louis every day, and will continue to do so. I will keep praying for a cure and a miracle. Will is the most precious child, and we will never be able to comprehend why this has happened. We love you all so much. My mom or I would love to take or pick Nicole up from school anytime. I am sure there are many days when you don't even feel like leaving the house. I also just read about the magazine fundraiser. I am going to definitely order some magazines. I wish there was more that I could do. Love, Amy
Amy Swiney
Birmingham, AL
United States
MONDAY, NOVEMBER 26, 2007 03:05 PM, CST
Misty.
Thanksgiving day was so full of love, warmth and compassion in your home. What a beautiful life you have and share with all of us.Will and Nicole have an enchanted life. A better life than any child could wish for...Loving, attentive parents, every toy imaginable and an extended family that love and care for them deeply too.
I do believe that God will give you the strength you need at the moment you need it. If you ever have a day that is too much to bear PLEASE KNOW THAT I AM HERE FOR YOU. You are surrounded with friends and family that love you and are very concerned for you. It is truly unthinkable of what you must endure in the future. My heart breaks for you as a mother and caretaker. I pray for a healing miracle every day.
Lovingly,
Michele
Michele Burbank
MONDAY, NOVEMBER 26, 2007 09:55 AM, CST
We had such a good time on thanksgiving day. Thanks for all your hard work. I can only imagine how emotional it would be to cope with all that is going on. Cherish each hour of this day for it can never return. (Og Mandino)... With love, Bryan, Angie, Amelia, Dawn, David & Dawson...
Bryan Burbank
MONDAY, NOVEMBER 26, 2007 09:26 AM, CST
Cooper's mom has the right attitude of living for today. I know it is so hard not to think of what the future holds, but God can perform miracles and we have to keep on praying for a cure. Cherish every moment every holiday. Will was such a joy to be with Thanksgiving. He may not be able to vocalize his thoughts with words, but all you have to do is look into those big smiling eyes and see all the love in the world in them. He is such a happy child and is very aware of everything around him. Love Aunt Carol
Carol Wilson
SUNDAY, NOVEMBER 25, 2007 09:41 PM, CST
Hi Misty,
What a difficult day this has been for you; I am so sorry. I can not imagine how challenging things are for you and your family. I just want you to know that I pray for strength, hope and a miracle for you, Will, Louis and Nicole every night. My girls do as well.
Tracy Gossett (Hoadley)
Tracy Gossett
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SATURDAY, NOVEMBER 24, 2007 08:06 AM, CST
You guys are so inspiring. What a great reminder that it is all about love. We are so glad you had such a great Thanksgiving Day. Just seeing all of you together in the car in the parking lot at school the other day, Will had a great big smile and he was so attentive to us. What a reminder that "it is not about me". Nicole is such a strong, sweet big sister. Remember to call if you ever need help to and from school or anything else. Thoughts and prayers to you everyday. May the Peace of God continue to be with you always.
PJ, Kelly, Ashley and Tanner Tessmann
Kelly Tessmann
FRIDAY, NOVEMBER 23, 2007 01:32 PM, CST
Misty, I hope you all had a wonderful Thanksgiving. Its so good to be back on your website and seeing all the love from so many. I want you to know that you and your family stay in my prayers and are an inspiration to so many lives. I know that Lou looks down and smiles. I miss you all so much. Its been too long. Heather, David, J.D. and Piper arrived back from China last night with Kai, who will be 3 in March 2008. He doesn't speak English, we don't speak Chinease but we all speak "love" so everything will be great. You set a day that will be good and lets all get together. I haven't seen Rebecca since the last time we were together. I do stay in touch with Michele. I love you all. Jaye
Jaye Ottinger
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Vestavia,, AL
United States
WEDNESDAY, NOVEMBER 21, 2007 08:40 PM, CST
Misty,
I too am a Mother of a Sanfilippo child. His name is Bryce. I saw your entry in Coopers guest book, you may have already heard of my son.
I find it adds to our strength in reaching for a cure for this horrible disorder.... the more information we share the closer the researchers can fulfill the HOPE we carry together.
Each day is a Blessing with our children. May we live the lives we have together with them filled with happy moments to treasure.
sharing HOPE...
Koren Adams
Webster, MA
United States
THURSDAY, NOVEMBER 15, 2007 02:03 PM, CST
Misty,
Thanks so much for leaving a note in Frankie's guestbook! I lost your information when we met at the CDL.
Now that I have your link, I'll be able to keep up with you and Will. I hope things are okay. I just ran on here to leave you a note, but I'll be reading up on Will tonight.
Take care Hugs & Prayers,
Cynthia, Frankie's mommy
Cynthia DeMatteis Hamden, CT
FRIDAY, NOVEMBER 09, 2007 08:44 AM, CST
Misty-I am so glad Cooper's website has helped and inspired you. I didn't want to do it at first, but after reading the journals that proceeded us, I knew I had to help other families too. I can't tell if you are going through with transplant or not, but I do know there is NO right answer. I have also learned that not everyone needs to live 80 years to make an impact on the world. Some people are so amazing they can do it in 8! There will be plenty of time to mourn the loss of your child when he is gone, so for now we have to LIVE every single day to the fullest with HOPE. Please know many have walked this path before us, and lean on them when you need to. As for you and I with 4 year olds, we can walk it together.
Hope & Prayers-
shannon rieg
TUESDAY, NOVEMBER 06, 2007 06:26 PM, CST
Misty,
Great to read your entries..and get caught up with you. Your children are beautiful. I will check in often to keep updated. Best Jennifer
Jennifer Siedman
TUESDAY, OCTOBER 23, 2007 02:13 PM, CDT
Thank you for coming by the fire station today and sharing Will's information with us. We will keep him in our thoughts and prayers at all times. I'm sure the good Lord has a plan for bringing such a special boy like Will into the world. Please let Him know that he is welcome to come visit us at the station and see the trucks ANYTIME he wants to. If there is anything the NSFD can do please let us know, no matter how small it may seem, we will be more than happy to help out.
God bless and stay strong Will !
Randy Sipe
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WEDNESDAY, OCTOBER 17, 2007 03:09 PM, CDT
Dear Luthcke Family,
I am so sorry to hear about Will's diagnosis. I had the privelege of teaching Will last year in music for 3K at LBK. Will always had the biggest smile when he came to school. I miss seeing him this year but am happy you found a good program at Oak Mountain. I will be praying for you and your family. Please don't lose heart or hope.
Kristi Plemons
Chelsea, AL
FRIDAY, OCTOBER 12, 2007 10:44 PM, CDT
Hello Luthcke family! Misty I pray this finds you better in body and spirit. I listened to you Wed and I heard you. I hope, in your heart you know that no matter what, I will do anything to help. I know I am busy but never to busy to help you and your family. Will means alot to me and finding any hope we can is very important to me. YOU are important to me and Nicole and Louis. Life will never be the same but I will be....Kelly
kelly hamer
FRIDAY, OCTOBER 12, 2007 03:44 PM, CDT
Misty,
Wow, that was so easy. I am a little slow at computer stuff...usually. I just went to the top of this page and clicked on links and ordered a magazine...it took 90 seconds. This is a wonderful way to help ! You are amazing at what you can find time to do with your exhausting days. I am so in awe of what you get accomplished. Ethan and I are looking forward to the hayride. Keep on pushing forward.
Love and kisses to all,
Michele Burbank
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THURSDAY, OCTOBER 11, 2007 02:36 PM, CDT
Hi Misty,
Thanks for stopping by Jesse's page.. I love coming by to visit new websites. Will looks wonderful. Jesse had many many words at one time also. I remember it all so well. He did so well until about 5 or 6 years old. This is when we saw little things slipping away for the next 4 years. Then THANK GOD for genistein!! It has basically stopped the disease in it's tracks for the past 2 years. We've even seen some improvements! It's not a cure, but it is buying us time while looking for a cure!
Give Will hugs from Jesse and I. Praying your fundraiser goes well also!
In Love,
Patty Taormino Baltimore, MD United States
THURSDAY, OCTOBER 11, 2007 10:51 AM, CDT
Just wanted to let you know we are praying for a cure...Hope that everyone is doing well...Count your blessings. Once you realize how valuable you are and how much you have going for you, the smiles will return, the sun will breakout, the music will play, and you will finally be able to move forward the life that God intended for you with grace, strength, courage and confidence. (Og Mandino) Lou's favorite author...With love Bryan, Angie, Amelia & Dawn...
Bryan Burbank
THURSDAY, OCTOBER 11, 2007 06:48 AM, CDT
Hello Misty,
Just viewed Will's website for the first time. How beautiful! Your story sounds oh so familiar. Our family has walked the same jouney with our Elisa who is now 13 years old. Thank you for contacting me. I tried to respond to your email and it bounced back. Please call me at 416-223-0078 when you have a moment. I'd love to talk. Our love and prayers are with you and your family... hang in there!! =) We'll never give up hope on a cure or treatment!
Elisabeth Linton and family... Toronto, Canada
Elisabeth Linton
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Toronto, ON Canada
WEDNESDAY, OCTOBER 10, 2007 09:56 PM, CDT
Misty, I'm so sorry you were having a bad day today. There is nothing anybody can say to comfort you, you are living any mother's worst nightmare. Just know that there is a hand when you need one to hold or to help you get back up when this disease has pulled you down, there is an ear to listen when you need to talk , there is a voice that will talk you through the chaos, and there is a shoulder when you need to cry. Look around you. You are surrounded by family and friends that will be anything you need. Let me know if I can do anything. Kandi
candace joines
WEDNESDAY, OCTOBER 10, 2007 02:34 PM, CDT
Misty,
I am so sorry to hear you had a sad day yesterday. Remember many times it is darkest before the dawn of a new day. Know that there are so many of us here with you and would do anything to help.It is truly incredible how well Will is doing...no surprizingly with a mother like you behind him. We are all looking forward to the Halloween Hayride. We love you and will see you all soon.
Love and kisses,
Aunt Michele
Michele Burbank
MONDAY, OCTOBER 01, 2007 11:36 AM, CDT
Know that Will, Nichole and the both of you are always in our prayers and the family will always be here for you. We are praying for a breakthrough procedure. Hope to see all of you soon. Aunt Carol
Carol Wilson
WEDNESDAY, SEPTEMBER 12, 2007 08:22 PM, CDT
Hey!
I am the other pre-k teacher that willl sees for a short period of time during the day. I was just thinking about you guys and wanted you to know that I am enjoying getting to know Will and he has so much fun in my room! Let me know if I can do anything.
Allison Weiland
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AL United States
WEDNESDAY, SEPTEMBER 12, 2007 12:54 PM, CDT
Hi-just wanted to say that we are glad Will is doing good and hope to see you guy's soon!
Love,
The Cordy Family
Amelia Cordy AL United States
TUESDAY, SEPTEMBER 11, 2007 03:33 PM, CDT
Misty,
Will looked so good on Sunday. It is just an example to the committment of loving and caring you provide to him 24/7. I pray every day for a miracle. We are all looking forward to fundraising so the scientists and doctors can take a giant step forward in finding a cure.
love and prayers,
Michele
Michele Burbank
MONDAY, SEPTEMBER 10, 2007 08:02 AM, CDT
So glad to hear Will is doing great after surgery. I bet the nurses were loving on him as he was blowing kisses!
Hugs to all of you!
Andrea Lindenberg Neal
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SATURDAY, SEPTEMBER 08, 2007 07:09 PM, CDT
Hey Misty,
I am so glad Will is doing so well after surgery. He is so resilliant !!! We think of all of you often and keep Will and all of you in our thoughts and prayers. I can't wait to hear what he thinks about his hearing aids. Take care.
Janis Brush
Special Services Center
Janis Brush
SATURDAY, SEPTEMBER 08, 2007 12:29 PM, CDT
Hi Misty and Family,
We hope Will is recovering and healing from surgey nicely. We pray that everything went good at the hospital on Friday. We are always thinking of you guys. Call me for anything. I know he is precious to so many people. He is well loved as are all of you. We approach the throne of God boldy and pray for complete healing from his disease.
Mark 1:41, 42
Moved with compassion, Jesus reached out and touched him. "I am willing", Jesus said. "Be healed". Instantly the leprosy disappeared, and the man was healed.
Kelly Tessmann and Family
Kelly Tessmann
Birmingham, AL
United States
THURSDAY, SEPTEMBER 06, 2007 08:12 PM, CDT
Hi Misty,
It is Tracy again; I check Will's site often and you are close to my heart. We pray for you and Will every night and will add an extra one for his surgery tomorrow. I am sure he will do well but I know how scary any surgery is.
Tracy Gossett
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THURSDAY, SEPTEMBER 06, 2007 03:48 PM, CDT
My Dearest Misty, Louis, Nicole and Will,
I just want you to know that I feel as if I have my arms around you and holding you to my breast. I love you all so very much and want you to know you are in all my prayers every day.
If you have to have surgery, Childrens Hospital is a fine place, I will always remember how good they were to J.D. and our family.
Misty, lets get together anytime that is good for you. We will invite the whole family and make it an afternoon, evening or whatever. Love you forever, Jaye
Jaye Ottinger
Vestavia,, AL
United States
THURSDAY, SEPTEMBER 06, 2007 01:27 PM, CDT
I'll be thinking about all of you and praying for that sweet boy. I know that he will come through it well. He'll get lots of ice cream on the other end of it! Love, Judy
Judy Johnson
Birmingham, AL
United States
THURSDAY, AUGUST 30, 2007 07:50 AM, CDT
Just a quick 'hang in there' note to you all! We are thinking about you and saying prayers. I met a mom who reminds me of you, Misty. Her little boy has Muscular Dystrophy - they go thru so much everyday. The two of you have the same sort of resolve and love only moms going through this sort of thing can understand. She mentioned that she's lost a few friends b/c they don't know what to say, so they just stop calling. I don't want to be that type of friend. And judging by all the love poured into this website by family and friends, you have a beautiful circle of people around your family. You all will never be alone!!
Love and hugs.
Andrea Lindenberg Neal
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TUESDAY, AUGUST 14, 2007 11:04 AM, CDT
I am Will's Aunt Sharon. I just want to say how very proud of my little angel I am. He battles this disorder every day and always has a huge smile on his face for everyone he sees. He plays, goes to school, rides his 4 wheeler and does many of the things that any other child would do. He is able to do things that you wouldn't think he could do. I pray everyday that a cure will be found in time. He is my little champion, my hero, my littlest angel my Will and he holds my heart in his little hands.
Sharon Greene
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Birmingham, AL United States
WEDNESDAY, AUGUST 08, 2007 08:31 PM, CDT
Misty,
Will is such a sweet boy and always will be! Thank you for always opening your home to us for swimming lessons. Please know that your family is in our thoughts and prayers. Don't hesitate to call if you need anything!
Love,
Tina, Samuel and Olivia Brown
Tina Brown
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SUNDAY, AUGUST 05, 2007 11:13 PM, CDT
Hi Misty,
I am Janis Brush. I scheduled and tested Will at Special Services Center. I remember Will's beautiful smile and his boundless energy. We talked about growing up in the same area of town. I wanted to tell you how proud I am of you for persevering in your quest to find out what was wrong with Will. And while the answer is not the one any Mom wants, you now know to make the most of each moment, something many of us take for granted. If there is anything I can do for you or Will, please let me know. I appreciate your courage and strength in sharing your story with all of us. Good luck
Janis Brush
Shelby County Schools Preschool
Janis Brush
WEDNESDAY, AUGUST 01, 2007 05:10 PM, CDT
Misty,
With all you are going through, you STILL managed to make me laugh when I saw you yesterday at the high school. I saw so much strength mixed in with the pain in your eyes. You are an inspiration, whether you realize that or not...to Will and everyone who hears his story. I'm so sorry for the pain. I'm also proud of you as a mom....and as a friend. Hugs to you, Nicole, Will and Louis. Let's just get on our 4-wheelers and go for a ride, ok?!
We love you!
Aunie Lindenberg Neal
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Birmingham
WEDNESDAY, AUGUST 01, 2007 02:23 PM, CDT
Mitsy:
I am so sad to here about Will. You are in my prayers during this difficult time. Michele always keeps me up to date on all of you - as growing up you were like my second family. May you feel God in the midst of your pain and in your search to find peace in this very tough time.
Love you. Anita
Anita Thomas
WEDNESDAY, AUGUST 01, 2007 01:03 PM, CDT
Misty,
I am one of the many people who read your journal daily looking for updates on Will, but have never left a message. I am at a loss for words but want you to know that you are in my thoughts and prayers each and every day. You are a wonderful mother with precious children (and in my very humble opinion, your mother would be very proud of you.)
Best wishes and love your way,
Heather Olivet
Heather Olivet
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Birmingham,, AL
United States
WEDNESDAY, AUGUST 01, 2007 10:55 AM, CDT
Misty,
Tears stream down my cheeks as I read your entry today. I swear our mother was a saint. Sometimes I think she is reunited with her mother and grandmother that she loved so much. If this life really is a blink of an eye...we will see them all again soon. If Will gets there before us...you know he will be adored, loved and cared for. I don't understand why the good and innocent must suffer. Please lean on me...I will always be here for you.
love,
Michele
Michele Burbank
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WEDNESDAY, AUGUST 01, 2007 09:40 AM, CDT
Misty,
I wish none of this was happening to Will and all of you, and I so wish I knew of a way to take away your pain. Your strength is remarkable as is your determination to help other families in a similar situation. Please call if I can be any help. Otherwise, know that you, Louis, Nicole and Will are in my thoughts and prayers.
Deanna Calvert
TUESDAY, JULY 31, 2007 08:44 AM, CDT
Hey Misty,
I am so glad to hear that you finally have gotten some answers and a great doctor. Tell Nicole and Will we miss them very much and think about them every day. We are keeping all of you in our prayers. Never hesitate if you need anything, I'm just a phone call away.
Love,
Shannon
Shannon Akers
MONDAY, JULY 30, 2007 02:15 PM, CDT
There needs to be more Dr. Escolar in the world. I suppose you are on your way back home. I am so glad you got to go, but are always glad you are back here with us.
Pick a night and lets "do it again". It can be a going back to school celebration for all the children. I love you Misty, Will, Nicole, & Louis. You are all so very special. Jaye
Jaye Ottinger
Vestavia, AL United States
MONDAY, JULY 30, 2007 02:07 PM, CDT
Hi Misty! This is my first time to visit your caringbridge site for Will. Kandi talked me through some of it...just before the cell phone turned off. You and your family are so loved! I'm in tears after reading their messages. I've missed you, Nicole and Will this summer. We had all these plans to get together, and here we are with only two weeks until school. I remember so well our last conversation just before you left for Duke about miracles and love...I'm praying daily for all we talked about to come to fruition!!!! I love you guys! Call me when you return from the lake. Catherine
catherine crabtree
SATURDAY, JULY 28, 2007 02:37 PM, CDT
Misty--I have cried for days thinking about will. When I heard my first response was to drive right over and be there. There has been so many nights that I have wanted to call...God I miss you!! This is not right... not Will! I remember the two weeks at the beach the fun we had just you and me and the kids. The daily bond that you and I and the kids formed... Memories that will last for ever. Will is so wonderful and can melt anyone with his beautiful eyes and smile. Savannah so misses Nichole she talks about Disneyworld all the time. I have had some life changing experiences this year and have learned to lean on a higher power. You and your family are in my thoughts everyday. I think you know how I feel... the bond that we had can never truely be broken. Please allow me to help....I love you....Kim
kim baker
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FRIDAY, JULY 27, 2007 12:16 PM, CDT
Can't wait for you to get back to B'ham, we MISS you guys! The Joines Family
candace joines
THURSDAY, JULY 26, 2007 04:19 PM, CDT
Luthcke family
We are happy to have the opportunity to know Will and your family. Your story is so touching and helps us in the school system remember why we do what we do each day. We hope to provide assistance and support to you all in any way we can. You are all in our thoughts and prayers during this time. We can't wait to see Will when school starts. Let us know if we can help in any way.
Susan Clark
Shelby County School, AL
THURSDAY, JULY 26, 2007 03:12 PM, CDT
Hi Misty,
It is your old neighbor - Tracy Gossett (Hoadley). It is a bit of a long story how I came to know about Will and all you are going through. The common link is Catherine Crabtree, who is in my Sunday School class. When I put two and two together, I was so saddened to figure out that the little boy I was praying for was actually your little boy. Catherine emailed me that you had a site about Will and I took a stab at finding it. What adorable pictures! I got your cell number from Catherine but obviously don't want to disturb you this week. I just had to let you know that I am thankful I have found you again and I would love to see you and meet Will. I will continue to pray dilligently for Will, you and your family.
Love, Tracy
Tracy Gossett
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Birmingham United States
WEDNESDAY, JULY 25, 2007 11:12 PM, CDT
Hello Luthckes hope all is well and Louis trip was safe. I am praying for you guys to get through all of this especially the MRI tomorrow. I will thinking of Rebeca too. Hope you found the chucke cheese. I have thought of you often and am rubbing my necklace as I pray. Love you, Kelly
kelly hamer
WEDNESDAY, JULY 25, 2007 10:59 PM, CDT
Misty,
What a blessing it is to have Will in my classroom! Thank you for allowing him to stay at OMES. We are in constant prayer for God's will in helping you find the best treatment for our sweet Will! There are so many people praying for your family- many you've never met. Stay strong! Love, Ms. Denise
Denise Davis
WEDNESDAY, JULY 25, 2007 07:59 AM, CDT
Misty we love you...Tell Will & Craig we said hello...
Bryan & Angie...
Bryan Burbank
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TUESDAY, JULY 24, 2007 07:18 PM, CDT
Misty,
Hi. We just wanted to let you and Will know that both of you are in our thoughts and prayers. We miss and love ya'll very much!
Dawson, Amelia & Eric Cordy
Amelia Cordy
AL United States
TUESDAY, JULY 24, 2007 09:05 AM, CDT
Misty- We are all thinking about you and Will. This will be a difficult week for both of you. Our thoughts and prayers are with you. Know that everything is fine in B'ham, and that we will continue to be here for your family. Even though it feels like it, know that you are not on this journey alone. There will be things that only you can do, please allow others to help with the rest. We love you guys! Kandi
candace joines
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TUESDAY, JULY 24, 2007 09:03 AM, CDT
I am so glad Craig is able to be there with you. Please give him my love. Misty, it sounds like these test must be so hard for you and Will. Maybe you have the worst ones behind you. I want you to know I think of you all each day and pray every night. I love you and yours so much. Thanks for keeping all of us in the loop. This is such a nice idea. Love forever, Jaye
Jaye Ottinger
Vestavia,, AL
United States
MONDAY, JULY 23, 2007 09:04 PM, CDT
Misty,
Before E had to have his spinal tap a doctor told me " he will not remember this and you will never forget it " Try to be strong for sweet little Will. I really believe he lives "in the moment", and will not dwell on the unpleasantness of today. Will is so lucky to have such a devoted and loving mother. Tell uncle Craig "happy birthday." We love you all 3. We in Birmingham are all praying for you constantly .
Michele
Michele Burbank
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THURSDAY, JULY 19, 2007 10:44 AM, CDT
Misty,
I am blessed each day upon reading your journal entries and the wishes from friends & family. We hold your family in our hearts each day - our prayers are with you & especially sweet Will. Best wishes next week - we anticipate great news from this next step of your journey.
Love, Tina, Donna, Lily & Oliver DiGiorgio
Tina DiGiorgio
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Hoover, AL United States
TUESDAY, JULY 17, 2007 08:36 PM, CDT
Misty,
I wish you the best of luck in NC. Will is such a precious child and he is in my prayers. Jamie has missed seeing him at LBK this summer and asks about him often. Please take care of yourself and remember that Nothing is impossible with God. (Luke 1:37) Please don't hesistate to ask if there is anything that myself or my family can do for you or yours.
Love, Lisa
Lisa Briggs
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Birmingham, AL United States
MONDAY, JULY 16, 2007 12:24 PM, CDT
Misty,
I enjoyed having dinner with your entire beautiful family last week. A few things I learned from Will:
Smile, most everyone will smile back
most people really do care
most people really do want to help
most people really are nice
enjoy the moment
give love unconditionally
you don't need words to really communicate
love, eldest
Michele Burbank
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WEDNESDAY, JULY 11, 2007 09:15 AM, CDT
My Dear Friend, Misty that is exactly what you are. How could I have gone through all I have in the past few years, months, weeks and days without your unconditional love, friendship and caring! My girls and I were blessed with to have such an incredible friend!! Now it's my turn so please let me try in some measure to be the friend you have always been to me. Will is an angel. Every time I think of him, I hear him calling Katie and when he sees her that incredible smile that just lights up his whole face. This is the hardest thing you will ever have to go through in your life and I am here for you. I will be there in a moment if you need me. I love you all!!
Shannon Akers
Shannon Akers
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TUESDAY, JULY 10, 2007 07:06 PM, CDT
Misty, I would like to thank you for allowing me to become part of your family. The joy and love I feel is immearsurable. Will and Nicole are always so happy and loving. Even if Will doesn't feel well he is a love and of course Nicole is always and forever our Princess. I feel so special after my last visit because I got the ear caress. What more could you ever need? To see those smiling eyes and hear the laughter from them both is amazing. I want you to remember above all else you and your family always have me....nothing will ever come between me and whatever you may need. Even when you don't need me my heart is with you. We are wonderwomen most of the time but we still need help, PLEASE ASK your sanity may depend on it. Your strength and faith in something good will sustain you, sometimes it won't feel like it and that's when your family and friends step in. Love You All, Kelly
kelly hamer
MONDAY, JULY 09, 2007 01:33 PM, CDT
I think of you often and send prayers of hope to Will and all of your family. I wish you courage and strength...and a helping hand whenever you need it. love, Judy
Judy Johnson
Birmingham, AL United States
MONDAY, JULY 09, 2007 01:14 PM, CDT
My Dear Misty,
I want you to know just how much I love you. You have grown into a lovely lady and you are such a great Mother. What a beautiful family you have.
I am so thankful that God send Will to you and your family. He knew how much love and support he would have with you, Louis and Nicole.
Please know you will continue to be in my prayers.
Love you forever,
Jaye Ottinger
Vestavia, AL United States
MONDAY, JULY 09, 2007 11:04 AM, CDT
I honor your bravery and courage. Will loves life and he deserves happiness. Embrace him with love. I think of him often and miss seeing his smiling face. Please know that I am always thinking of him and your family and praying for you guys! Lots of love!
Shannon
Shannon Barron
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SUNDAY, JULY 08, 2007 08:07 PM, CDT
Misty, (middle sissy)
You know mom is looking down at you now, amazed at your courage and strength....as am I. Know that I am always here for you, Louis, Nicole and Will.
Much Love,
Michele (eldest)
Michele Burbank
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Birmingham, AL
THURSDAY, JULY 05, 2007 02:16 PM, CDT
I can't imagine the struggle between caring for both Nicole and Will. Every day I think of you all. I hope and pray for success in any and every treatment option you have. I know how strong you are and that you can do this. Push the doctors and nurses. Ask for anything you need. Demand their attention if you have to. My other prayer is for you to show yourself the same compassion that you show to your children. You are human. Allow yourself to be mad, angry, sad, hurt... and happy whenever possible. Avoid negative people and energy and focus on surviving this. I love you all.
Diana Contorno
WEDNESDAY, JULY 04, 2007 10:39 AM, CDT
Everytime we see Will, he is smiling. Everytime we've spent time with your family (and in your home), WE'VE smiled and laughed. You all deserve nothing but smiles and laughter in return. THIS just isn't right. No family deserves this. Reality makes no sense, does it?. BUT so many people love you and your sweet family. We do, too! We will pray for you...pray HARD!! Another reality is that miracles and great research are out there - and we will pray for that, too. Lexie, Justin and Aubree send their hugs to Will and Nicole...and you! All our love.
Andrea Lindenberg Neal
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birmingham, AL
United States
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